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Autoimmune Hepatitis and remission?

Autoimmune Diseases | Last Active: 14 hours ago | Replies (12)

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@nellellen

Good morning,
Other than extensive fatigue, I had no other symptoms associated with the AH. Sjogren's was and is another story. If I'm remembering correctly, the liver does regenerate itself. My liver enzymes have been in the normal range for a very long time. Although there is debate about this, my oncologist believed the aziaprothine was A contributor to the development of cancer. Emphasis on A...meaning one. It was eleven years between my diagnosis of AH and NHlymphoma. That's eleven years of aziathropine. But, in my case, the greatest contributor to the cancer was the Sjögren's syndrome. Approximately 7-10% of those with SS develop lymphoma...and both my Dad and I developed both.
Remembering back, I think I was taken off the aziprothine once to see if the liver enzymes might remain normal, at the time it didn't work. You might consider doing that after some time...I'm not a doctor, but eventually the liver was not the subject of the autoimmune attack. Also, if you haven't heard this, this is very good advice. Don't get live vaccines. For whatever reason, live vaccines can initiate an autoimmune response. Good luck. We're all different, but it's great to share with people facing the same rare disease...there is hope.

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Replies to "Good morning, Other than extensive fatigue, I had no other symptoms associated with the AH. Sjogren's..."

Nellellen: That's wonderful that your liver enzymes have stabilized for the long haul. Hope the aziprothine was not a major culprit in the cancer given that it seems to be a common treatment for autoimmune hepatitis.
However, it sounds like you have been in good hands with healthcare professionals in treating your various conditions; that's so important.
Yes, I had heard to stay away from live vaccines. Since the diagnosis, I've actually now become even skeptical of flu and COVID vaccines though I realize they don't fall into the category of live vaccines.
Yes, I am getting a wealth of information re: what this disease looks like on this discussion board, and it is great to connect with people like you who have personal experience with it. I really feel well prepared to discuss options with my healthcare team as a result.
Thanks so much for all your insights into this condition. It would be great if my enzymes have been lowered in three weeks with the moderate dose of prednisone. Fingers crossed!