I am not on any medications after experiencing side effects from 1 of the drugs prescribed for MAC/BE. I have had 19 hemoptysis episodes in the past year, some major and others less alarming. I was hospitalized once (2023) because it was Labor Day Weekend and the hospital doesn't do bronchoscopies on holidays so I had to wait (due to the IV already in my arm, which made it easier for all concerned to stay) until Tuesday after the weekend.

Initially, I went to the ER the first 4 times. The doctor in the ER said, after viewing the photos I took of my hemoptysis and as "major" as they appeared to me, it isn't necessary to go to hospital unless the amount is over 1 tablespoon of pure blood (which could be a pulmonary embolism but most are not.) My ID doctor, after seeing the photos I had taken, said a couple of them looked to be over the 1 tablespoon but, like the ER doctor, said it isn't necessary to go to the ER every time unless the hemoptysis continues over a long period of time. My pulmonologist, however, told me to go to the ER. So opinions vary. I don't like the ER or hospital stays so will stay away from that. (I recommend taking photos of your episodes to show the doctor).

I use only the Aerobika for airway clearance. Adding the saline/albuterol, or any combination of those, causes hemoptysis episodes, including, occasionally, the use of the Aerobika by itself (the most recent 6-8 episodes). Another thing to consider, my dietician asked me to stop taking Omega3 because some studies show that it can cause blood thinning and hemoptysis.

There really is no remedy for hemoptysis. For some with BE/MAC, but not all, it isn't uncommon but a true nuisance at any rate. Although in the beginning my pulmonologist prescribed prednisone, it is generally not recommended even though some doctors will prescribe it.

Meanwhile, in spite of the episodes, I go on with my life, not allowing them to interfere with my functioning being, not ideal but doing okay. I never know when I'll have the next episodes and, thus, I carry on. I've had episodes as short as 2 days apart and others happen after a 2-3 month "vacation." Just when I think I'm hemoptysis free, BAM!, another one happens. Such is my very interesting life!

I hope this helps and wishing you well!