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Autoimmune Hepatitis and remission?

Autoimmune Diseases | Last Active: 14 hours ago | Replies (12)

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@marijo4

A few years ago, I woke up one morning, and I had gone yellow. I really should have known that I was unwell as I had been throwing up quite randomly for a while. My doctor said I should go to hospital, and I didn't want to but in the end, I was admitted for about a week. My relevant bloods were sky high, and looking back I'm surprised I survived. I didn't get on with the doctor in the hospital. He kept giving me different diagnoses and was quite unpleasant. The whole hospital experience was funny in hindsight. They were short-staffed!! one night I woke up to find another patient snuggling up to me in bed! Whoa!! I called the nurse who led the patient back to her bed, and lo and behold, a few minutes later she was back in my bed. Then a drug addict came in, (five bed room) and when everyone was asleep, she went around stealing whatever she could get from other patients. We had to call the police in the morning and she was taken away. Then another night, there was a full-blown fight in the corridor.....all in all like a battle zone. eventually, I moved to the care of another hospital in another town, and its been fine. I have just been pulled off Azathioprine, because my white blood count is abnormal. I have some liver fibrosis, but everything has generally improved, and I think I am being well monitored. I never touch alcohol since, as I think that would aggravate everything. I know azathioprine can affect white count, but generally I am well. Funnily enough I seem to have a few additional conditions alongside this one, and I was convinced I had sjrogens, but test said No. I understand that lymphoma can be a by-product of this illness, so I keep an eye on that. Stay well all!

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Good luck to you. I hope you read my other post to humbug. (#1 Dicken's fan here). Your experience getting diagnosed is not unusual; normally it takes a long time. My diagnosis of Sjogren's led me to the diagnosis of AH, because of the blood tests run after the biopsy of the mouth tissue. Are you on prednisone? Initially I was on high doses and eventually tapered off, although it took at least six months to get rid of the side effects. For me, the road has been somewhat different than what you read. I no longer have AH, but have developed several
autoimmune conditions that flare for a time period and then eventually go away. Fingers crossed. This happened with my Dad as well. I laughed at your experience and thought it sounded like my life...I'm usually on the wrong side of statistics...but this helps keep me focus on my issues and how to manage them.

Thanks for sharing your experience, Marijo4. That's quite the hospital experience with a full dose of drama to go with it! I'm sure it wasn't funny at the time, but what a great attitude to have in hindsight.
Yes, I have also read about azathioprine and white blood cell counts, so thanks for providing your personal insights and experiences re: possible connections. I will keep all these "tips" in mind for my future appointments given that my diagnosis is still only about three weeks old. I found your comment extremely helpful!