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Small Fiber Neuropathy and Epstein-Barr Virus

Neuropathy | Last Active: 2 days ago | Replies (35)

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@arflmi33

I think I am in a similar boat. After years of viral infections when I was younger, and then a confirmed lengthy bout with epstein-barr about 5 years ago, followed by a period with covid and long covid, I have peripheral neuropathy. All of my doctors except for my PCP look at me like I am being ridiculous when I bring these viruses up. My PCP takes it seriously, but there is not much he can do about it. The only things that seem to be helping me are a healthy, low sugar, low inflammatory diet and exercise every day.

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Replies to "I think I am in a similar boat. After years of viral infections when I was..."

It's discouraging when our doctors don't consider what we say. I had 25 years of non-stop shingles outbreaks and countless doctor visits, being told it's not possible to have ongoing shingles; it must be hives. Finally, a new PCP believed me, and I started taking antivirals. Five years later, an immunologist confirmed it by discovering the NK cell deficiency. It's all a mystery to everyone, and doctors don't have time to do the necessary digging to find answers. Diet, supplements, herbs, and exercise help me a lot, too!