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@arlene15

Question, does anyone with essential thrombocythemia JAK2 taking 500 mg of Hydroxurea twice a day have itchy skin? If so what helps? Drives me crazy in the evening and at bedtime.

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Replies to "Question, does anyone with essential thrombocythemia JAK2 taking 500 mg of Hydroxurea twice a day have..."

I've seen lots of comments here about itchy, dry skin, and unfortunately I experience it too. Alas, this is a "gift" of ET. Here's what Google AI has to say:

Itching is a common symptom experienced by people with essential thrombocythemia (ET), a blood disorder characterized by an abnormally high platelet count; this itching is often referred to as "aquagenic pruritus" as it can worsen significantly after hot showers or baths, and is believed to be caused by the release of histamine from abnormal blood cells within the body.

I've mostly switched from hot showers or bath to bathing with a washcloth at the sink. I have lotion bottles everywhere.

I guess the itching distracts us from the headaches . . . .

On another thread about itchy skin, our incredible monitor Lori suggested trying Dove for Sensitive Skin and Aveeno Oatmeal Body Wash. Cetaphil products were recommended too.

Hope you find something that works for you!

I have itchy skin on one 500 MG per day. When I was put on two a day on the weekend, it drove me crazy, along with other increased side effects so went back to one a day.
The Cancer Clinic pharmacist told me to take an antihistamine when needed. It does help.

Hi Arlene, I was diagnosed with ET Jak2 Nov. 2022.
I am taking 1000 mg per day at night. I am taking
1 Zyrtec in the morning. No other meds.
I changed my face lotion , body lotion, toilet tissue,
soap, anything what touches my body to parfume free
and alcohol free. Not wearing any make up or Mascara.
I am almost 70 years old, would not help much anyway.
😎😎
I am taking lukewarm showers, not hot snd cover up
when I am outside in the sun. It is working for me.
Hope this will help. Let me know.