1. < Osteoporosis & Bone Health

Forteo side effects

Posted by ninglike @ninglike, Dec 18, 2024

I was going to start Forteo next month but just saw the following discussion：https://www.inspire.com/groups/bone-health-and-osteoporosis/discussion/forteo-side-effects-urgent/?lid=knr77xgdlylk&utm_campaign=Activity%20Summary%20Email_Daily%20Send&utm_source=email&inspire-id=J3VQXPM9
I'm scared and start wondering if I should start Forteo, your advice is very much appreciated!
Thanks a lot in advance for your help!
Best regards
Ning

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mayblin | @mayblin | Dec 30, 2024
In reply to @redlo "I had stopped Fosamax around March,Beg April. Then I got my blood test mid. (Ctx99,P1np 19)..." + (show)
@redlo

I had stopped Fosamax around March,Beg April.
Then I got my blood test mid. (Ctx99,P1np 19) May. It Took nearly 3 more months to get my Forteo approved by insurance. So I started Forteo in August.
I wish I had insisted on getting a baseline before starting Fosamax to see what my Real normal Ctx and P1np were. What a learning journey. I feel so blessed to have found this group.
Best regards

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Thanks for sharing @reldo ! I think the delayed approval from your insurance company turned out to be a blessing which gave your bone remodeling an uptick from a suppressed state. Your early bone marker responses showed that 👍

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debsinwa | @debsinwa | Dec 31, 2024
In reply to @broken13 "I am also on Forteo, for a second time now. Can I ask what you are..." + (show)
@broken13

I am also on Forteo, for a second time now. Can I ask what you are taking for continued care after Forteo? I am already worried about that.

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broken13 - I'm sorry I took so long to respond. My Endo wants me to do the yearly Reclast injections. I will start in April. Not looking forward to it. It sounds like most get sick for a few days, if not worse. Did you do the full 2 years of Forteo the first time? What did you take in between your 2 rounds of Forteo?

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1 reply
broken13 | @broken13 | 4 days ago
In reply to @debsinwa "broken13 - I'm sorry I took so long to respond. My Endo wants me to do..." + (show)
@debsinwa

broken13 - I'm sorry I took so long to respond. My Endo wants me to do the yearly Reclast injections. I will start in April. Not looking forward to it. It sounds like most get sick for a few days, if not worse. Did you do the full 2 years of Forteo the first time? What did you take in between your 2 rounds of Forteo?

Jump to this post

I took Forteo in 2016 for the full two years. Prior to that I had tried Bosophomates but discontinued after only a few weeks when I had a severe reaction. I only went on Forteo after seeking out an endocrinologist on an urgent basis, as I was experiencing a series of spinal compression fractures. Following the two years of Forteo, I did only one shot of Prolia and had osteocrinosis of the jaw and lost two molars which occurred when I was near due for the second shot. For the last 5 years I was taking Raloxifene with no side effects. I am now 67 with -3.5 in my hip, as they can no longer take reading from my spine.
Recommendation was to do Evenity, but that was not approved, so I am now 2 months in with another course of Forteo. Not sure how long I will take it or what I will follow up with at this time. Would love to hear from anyone else doing an extended or second course of Forteo.
All the best to you!

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