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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
Have you been seeing a local doctor who has mentioned having a Myectomy? My first visit, I scheduled my surgery as well as I knew I was a candidate. I was hoping for an alternative treatment, but it wasn't in the cards. The surgery group is a bit "detached" from the HCM clinic in that they do other heart surgeries. I've not heard of Dr Said, but I can assure you he's likely very competent. He may even be the main surgeon with Dr D or Dr S observing/assisting. Or pehaps he does the evaluation and his comments/observation is sent to the other known doctors - not sure. This is a question to ask when you are evaluated. Have you looked him up in the Physician biographies? If not here is a link: https://www.mayoclinic.org/biographies/said-sameh-m-m-d-m-b-b-ch/bio-20149338
And yes, the risk is low (at a COE). I've drafted an article "so your having a myectomy" that is based on my 3 visits and myectomy surgery. Essentially its a what to expect, helpful hints (for you and your family), general orientation of the Mayo process. It should be completed soon, and I will post it.
Replies to "Have you been seeing a local doctor who has mentioned having a Myectomy? My first visit,..."
Hi, can you focus on the use of MYK-461 medicine in hcm treatment. A new drug which is on trial and how far it has progressed .I came to know about it from a e site
Hi @sankarpinaki - This drug is still experimental and is going through the FDA trial process in the U.S. They have gotten good results so far, and they are about to move into Stage 3 trials. I am not sure where you are located, but talk to your doctor and see if you are a candidate for the trial. They may have to refer you elsewhere if you are not near a location for the trial. Hope that helps. If you want specific information, I write a blog at http://www.hcmbeat.com which has published several entries about the drug and MyoKardia. Come on over and do a search or you can select the word in the keyword tag cloud, and they should all come up for you.
Thanx ,I am from India and west Bengal. Can u tell me where and whom shall I consult
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Sounds fantastic, @mbcube! I look forward to reading your article too, along with members in this group who, I know, will sincerely appreciate your time and effort. Thanks so much.