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Essential Thrombocythemia: Making treatment decisions

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (201)
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@lynnebgraham

I couldn't get my Anagralide through hospital was going to cost the earth to get through normal chemist. My haematologist wasn't available saw current haematologist who was shocked I had not had a Bone Marrow test done ever. Hence waiting for results in 5 days. Possibly myelofibrosis from what he has already seen yes waiting is making me worry.

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Replies to "I couldn't get my Anagralide through hospital was going to cost the earth to get through..."
janemc | @janemc | 4 days ago

I am so sorry for what you're going through.

After braving meeting the challenge of ET for 15 years, now you're facing new questions. Not fair!

Waiting for information is awful. Please remember, we're with you in spirit, every step of the way.

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nohrt4me | @nohrt4me | 4 days ago

There seems to be more they can do for MF these days. The MPN Research Foundation tracks studies and therapies, and they could be a good resource for you. You can Google their website. Pulling for you!

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