← Return to Essential Thrombocythemia: Making treatment decisions

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@ksyren

Yes, JAK2 ET. After experiencing shortness of breath (my only symptom), and some alarming blood work, my primary ordered a CT Scan which reviewed multiply pulmonary embolisms. Once resolved (2 months), a bone marrow aspiration and biopsy confirmed my hematologist's diagnosis. My platelets have range from mid 500s to mid 600s. Have been on Eliquis since the embolisms. I'm currently on 500 MG HU 3 times a week (2nd week). I was in processing of switching oncologists so haven't had blood work since taking the HU. The two doctors had differing ideas about treatment with my new doc being more conservative and having a good deal of experience with this disorder. I will know where we are in a couple of weeks. I'm still learning what are side effects, but so far very manageable.

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Replies to "Yes, JAK2 ET. After experiencing shortness of breath (my only symptom), and some alarming blood work,..."

You've been through a lot. You're taking good steps! Every dose of HU and Eliquis is helping you.

And finding an MPN specialist will be great too.

As you probably already know by now, HU makes our skin more vulnerable to sun damage. And it lowers our immune response. I wear a sun hat anytime I have to be outside, even when driving. And in busy indoor places, I wear a mask.

Please keep us posted -- we're rooting for you!