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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 10 9:47pm | Replies (763)Comment receiving replies
Hello, @sankarpinaki -- wanted to add my welcome to Mayo Clinic Connect. I believe perhaps the rest of your post may have been missing after "hi"? Interested to hear the rest of your message.
Replies to "Hello, @sankarpinaki -- wanted to add my welcome to Mayo Clinic Connect. I believe perhaps the..."
As fellow patients, we are not qualified to tell you whether your medications are appropriate. You really need to consult with a physician well versed in HCM. I believe that there is a HCM Center in India. This hospital has expertise in HCM. They have a designated HCM Center there named after Barry Maron who is a pioneer of HCM medicine in the U.S. Maybe you could travel there:
https://kalrahospital.comThank you very much. I have decided to go there but some time in the month of October. The place is far away from where I live and expensive too. Please continue giving suggestion to me. Once again thank you.
Hello @sankarpinaki,
Thank you for reaching out to the Connect community with your information. I hope you are able to follow up with Mentor @cynaburst's suggestion. I am from India as well, and wanted to recommend two other options – one in Kolkata. Both are big institutions, ranked well in their management of HCM, and you've probably heard about them:
– Apollo Hospital (Kolkata): http://apollogleneagles.in/heart.php
– Fortis Health http://www.fortishealthcare.com/india/diseases/cardiomyopathy-553
@neha4, would you have any guidance or insight that might help @sankarpinaki ?
Thank you for being so kind to me. I will surely follow the links. I had been to Apollo kolkata but the visit was futile. Docs are more interested in treating CAD. However kolkata is viable to me .whom shall I consult there for that I need guidance. I am really suffering. I am planning for Delhi but a few months later!but kolkata I can avail in a month or so. Thank you dear friend.
Hi ,My husband had the surgery 6 months back.We did the surgery at Mayoclinic.He is doing great by the grace of God.
I am orginally from southern part of India now living in the US. I know its hard to find HCM experts in India.I am glad to help you if you need any informations regarding the sugery and diagnosis i can help you .Hope you can find some experts soon..
Hi, got ur message. can you tell me how can I avail the treatment at Mayo clinic with the help of any charitable organization for an average Indian like me .
Thank you, @lina2017.
Hi @sankarpinaki,
Here's some information about Charitable Care and Financial Assistance at Mayo Clinic:
https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance
Hi, i have read the link but international patients are not covered under charitable schemes. can u inform me further about how can I avail such facility.
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Mam I am diagnosed with asymmetrical hcm on2017and I am 45yrs old. I am totally frightened because I feel a pain in my chest most of the time and even feel pain while speaking loud. I am a school teacher and find it difficult to do my job. I am on bisoprolol5mg,ecosprin10+7my doc advised me to take monotrate25mg to get rid of
pain but I didn't started it yet. Is it safe to take. I am. also taking sertaline 200mg twice and clonazepam.5 to overcome anxiety. My chest pain has made me. totally panicky. Can you please help me. I am from jalpaiguri West Bengal India a semiremote place and docs are not specialized in hcm rather they are more comfortable in treating CAD.