Anyone have multifocal bilateral groundglass alveolar on CT scan?

Posted by sharon72 @sharonsturdivan, Dec 1, 2024

Hello,
I got pretty sick after my first immunotherapy on Halloween 2024. Doctors have not agreed to do any additional treatment without more tests. My new CT scan showed multifocal bilateral groundglass alveolar infiltrates as well as a new area of internal cavitation. Anyone else have this happen? My blood cultures show that my white cells are very high on all the tests.
It's been a month now since my first immunotherapy. I am still sick. Anyone else experiences fevers, new cough which included minor amounts of bloods, constant sick stomach, loss of desire to eat? If I can't do immunotherapy I may have to just move forward with surgery and pray that I dont have to have an open.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

UPDATE: Still have not had any addition treatment! Was supposed to begin treatment with new doctor on Dec. 19th, however appt was canceled. It seems that the last 2 centers never got a PDL-1 test done, which I am being told is a requirement of Medicare before immunotherapy treatment. Sure hope the center that did do a round in Oct. won't be sending me a huge bill ! Expessially since it was not an approved combo drug for stage 2B.
I have since tapered off the prednisone but now I have developed shortness of breath. Scared that it will mean that the surgeon will refuse to do any surgery at all due to breathing, and that the mass has not moved away from the ribs which was the reason for the pre-surgery treatments in the first place. I'm beginning to get angry at myself. Thinking I should have just done the surgery in Sept, even though there was a good chance of an open and not robotics. If I had, I should have been healed up by now. As it is, I may not be able to do surgery at all. Dang I am scared to death.

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@sharonsturdivan

UPDATE: Still have not had any addition treatment! Was supposed to begin treatment with new doctor on Dec. 19th, however appt was canceled. It seems that the last 2 centers never got a PDL-1 test done, which I am being told is a requirement of Medicare before immunotherapy treatment. Sure hope the center that did do a round in Oct. won't be sending me a huge bill ! Expessially since it was not an approved combo drug for stage 2B.
I have since tapered off the prednisone but now I have developed shortness of breath. Scared that it will mean that the surgeon will refuse to do any surgery at all due to breathing, and that the mass has not moved away from the ribs which was the reason for the pre-surgery treatments in the first place. I'm beginning to get angry at myself. Thinking I should have just done the surgery in Sept, even though there was a good chance of an open and not robotics. If I had, I should have been healed up by now. As it is, I may not be able to do surgery at all. Dang I am scared to death.

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Sharon, @sharonsturdivan, We can't look back at decisions that we made in the past. With the information that you had, you made the decision that was right for you at the time. It won't fix anything to regret that decision now. Try to continue to look forward.
The PD-L1 test is generally done before immunotherapy is administered. It can be an indicator of how effective the immunotherapy might be (in most lung cancers). With your increased or on-going symptoms, is you doctor concerned about the wait? Did they give you an idea of how long the PDL-1 test will take to come back?

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@lls8000

Sharon, @sharonsturdivan, We can't look back at decisions that we made in the past. With the information that you had, you made the decision that was right for you at the time. It won't fix anything to regret that decision now. Try to continue to look forward.
The PD-L1 test is generally done before immunotherapy is administered. It can be an indicator of how effective the immunotherapy might be (in most lung cancers). With your increased or on-going symptoms, is you doctor concerned about the wait? Did they give you an idea of how long the PDL-1 test will take to come back?

Jump to this post

They said before Christmas that longest it would take is a week, but should have it within 2 days. I know I am impatient. If I have a plan I am fine but without one, I am a mental health mess. I have not been able to see the doctor nor talk to him via phone. Once the prednisone was finished, I developed shortness of breath and have been on O2 most days.

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