1. < Gynecologic Cancers

Newly Diagnosed: FIGO 2 Uterine Cancer: What does this mean?

Posted by gratefulcat @gratefulcat, Mar 4, 2023

Hi - My recent pathology report showed FIGO 2 for uterine cancer, and I am scheduled for a robotic hysterectomy next week. Does anyone know if these means the cancer has spread to other parts of the body? Has anyone had a cancer journey that started at this grade? Thanks for your help.

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red53 | @red53 | 5 days ago
In reply to @gratefulcat "My cancer was Stage 1A with positive pelvic washing. I had a complete hysterectomy, and they..." + (show)
@gratefulcat

My cancer was Stage 1A with positive pelvic washing. I had a complete hysterectomy, and they recommended brachytherapy as a follow-up treatment to reduce the risk of cancer recurrence.

I have decided to decline the brachytherapy/radiation treatment because of the research about the risk of injury to the vagina, bladder, and bowels.

Has anyone else refused radiation treatment after a low to mid-risk endometrial cancer diagnosis?

Thank you

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I didn't refuse radiation therapy, but I wish I had. I've had so much pain to my intestinal track, which is affixed and angulated in several places. With the nerves (I'll say dangling down) exposed. I have trouble one hour after I eat until the end of the digestive tract. Therefore, I have to be on pain medication 24 seven and when the "opioid crisis" came about, I had to be tapered from opioids and was given gabapentin to help. It did help but now what I'm hearing about patience coming off of gabapentin is terrifying. It appears that gabapentin is a harder withdrawal than opioids, at least that's what I'm hearing. Does anybody else have this problem or are using another therapy?

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red53 | @red53 | 5 days ago

I had stage three cancer, which means regional. It was in my pelvic lymph nodes and had not spread any further. I'm still here 11 years later so the therapy worked.

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2 replies
aardvark2118 | @aardvark2118 | 4 days ago
In reply to @red53 "I had stage three cancer, which means regional. It was in my pelvic lymph nodes and..." + (show)
@red53

I had stage three cancer, which means regional. It was in my pelvic lymph nodes and had not spread any further. I'm still here 11 years later so the therapy worked.

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Thank you for this encouragement! I’m 1 1/2 years in remission from stage 3. Had surgery and external and internal radiation. Hoping I’m as fortunate as you!

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paz1956 | @paz1956 | 4 days ago
In reply to @red53 "I had stage three cancer, which means regional. It was in my pelvic lymph nodes and..." + (show)
@red53

I had stage three cancer, which means regional. It was in my pelvic lymph nodes and had not spread any further. I'm still here 11 years later so the therapy worked.

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@red053 that’s wonderful!!! Are you doing anything special (diet, exercise etc.) to stay healthy?
Thank You

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1 reply
aardvark2118 | @aardvark2118 | 4 days ago
In reply to @paz1956 "@red053 that’s wonderful!!! Are you doing anything special (diet, exercise etc.) to stay healthy? Thank You" + (show)
@paz1956

@red053 that’s wonderful!!! Are you doing anything special (diet, exercise etc.) to stay healthy?
Thank You

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I’ve improved my diet (cut out sugar. Processed foods etc) and increased exercise Trying to keep stress under control not always successfully but everytime I read about someone years out from diagnosis it helps so much!

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1 reply
paz1956 | @paz1956 | 4 days ago
In reply to @aardvark2118 "I’ve improved my diet (cut out sugar. Processed foods etc) and increased exercise Trying to keep..." + (show)
@aardvark2118

I’ve improved my diet (cut out sugar. Processed foods etc) and increased exercise Trying to keep stress under control not always successfully but everytime I read about someone years out from diagnosis it helps so much!

Jump to this post

Thank You, I’m just starting my journey had radical hysterectomy in Oct 2024 had first of 4 internal radiation treatments. I’m trying to eliminate sugar, I don’t eat highly processed foods and I do exercise. I’m trying to adjust my lifestyle to eliminate a reoccurrence. Thank You for your suggestions.

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gisellef | @gisellef | 3 days ago

Good for you. The stress part of the equation is usually the hardest part to control.

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