Hi, I have had Essential Thrombocythemia for over 15 years. I was on Anagrelide, and this kept my platelet levels manageable. If I forgot to take a tablet which I did when I went on holiday once, my levels shot back up. However, once I was back on track, they became manageable again. Recently I had to have a bone marrow test, which showed myelofibrosis, but not all results back until 8th. Not sure how to take this. My new hematologist was very surprised that I had not previously had a bone marrow test done. Waiting for answers is hard.

Yes, JAK2 ET. After experiencing shortness of breath (my only symptom), and some alarming blood work, my primary ordered a CT Scan which reviewed multiply pulmonary embolisms. Once resolved (2 months), a bone marrow aspiration and biopsy confirmed my hematologist's diagnosis. My platelets have range from mid 500s to mid 600s. Have been on Eliquis since the embolisms. I'm currently on 500 MG HU 3 times a week (2nd week). I was in processing of switching oncologists so haven't had blood work since taking the HU. The two doctors had differing ideas about treatment with my new doc being more conservative and having a good deal of experience with this disorder. I will know where we are in a couple of weeks. I'm still learning what are side effects, but so far very manageable.