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← Return to Erosive Osteoarthritis
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I can’t find anyone, including my rheumatologist, that knows anything about this. Anybody out there have this, and have any information about how bad it is how fast it is how debilitating it is? If you do, please let me know. I’m just feel like I’m hanging here in outer space with no foundation. I have no idea what I can do and what I can’t do what makes it worse if anything and I know it’s incurable and there’s nothing I can do. I just don’t wanna make it worse.
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Thank you for this info
Hello @dlsparks, I moved your most recent post about erosive osteoarthritis to an existing discussion where you met other members discussing this diagnosis:
"Erosive Osteoarthritis"
- https://connect.mayoclinic.org/discussion/erosive-osteoarthritis/
@chris7121 , @parrotqueen, @heyjoe415, @mememc52 and @ljbrindle are a few members who have posted in this discussion and may have some more insight to offer.
@dlsparks, if you are comfortable sharing, have you been officially diagnosed with this type of osteoarthritis, but your current provider has no more insight to offer?
I have erosion osteo-arthritis, it's rare, not understood by medical and non-medical people. It is in my left femur, makes standing and walking difficult. I try my best to eat foods recommened for arthritis, try to avoid sugar but it is difficult. Gels, rubs help. Salonpas, Voltarian, pain relief drugs have been helpful. Some Teas are calming. Yes, hanging there is a good description, that's what I do.
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@disparks, this is the only best thing I've heard about Prolia. https://www.nature.com/articles/s41591-024-02822-0