Are you familiar with the Children's Cardiomyopathy Foundation? http://www.childrenscardiomyopathy.org/

They have patient support specialists and other families going through similar issues. They may be able to assist you.

Wishing you all the best.

Hello @neha4,

Welcome to Connect. As a parent, I can imagine how worried you must be, and we're so glad you've joined this group. I'd encourage you to view this webinar, where Dr. Joseph Dearani, Mayo Clinic cardiac surgeon, talks about pediatric congenital heart disorders: https://connect.mayoclinic.org/webinar/askthemayomom-about-congenital-heart-disease-and-pediatric-heart-transplants-1/

I sincerely hope @traceysmith @carjes @mbcube @ronaldpetrovich @debcrawford @pegan @sandys5546 @mollyb1968 and other fellow Connect members will share insights about their journey with HCM, as well.

In the meantime, you may also wish to view this Mayo Clinic webpage, and read some of the younger HCM patient stories:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/care-at-mayo-clinic/mac-20350208
@neha, we look forward to getting to know you; what symptoms did your son have, before being diagnosed? May I ask if there is a family history for HCM?

Thanks

Hi kanaaz Pereira..he was not having any problem..at regular check up he was diagnosed with some murmur doctor suggested us for 2d eco..after that we came to know that he is having HCM with COA ...at 5 months of age he was operated for COA hoping that HCM will improve .but it didn't help nd later at 1.7 years of age he had another surgery for SCAM...he is under medical supervision nd at present is gredient is 90 Nd doc are sugesting for another surgery..at present he is taking metarol 25 mg twice a day...we have been told that there is no medicine to cure HCM .Is there any further development which can cure HCM.
Their is no family history of HCM