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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 28 11:57am | Replies (877)
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@jshah

Hi my name is Jinal. My husband is 33 years old and was diagnosed with HCM. He is scheduled for Septal Myectomy surgery in Jan 2018. I had few questions:

1) After the surgery can we drive back to Chicago ( 6hr) or taking a flight would be better because of of bumps and snow on the road.

2) Are there any restrictions on food after the surgery.

3) My husband has Afib as well. Has anyone got the MAZE Procedure done with the Septal Myectomy surgery?

4) If you did the MAZE Procedure how was it and are there side effects????????? please help with this question..

5) What is the worst case scenario is the Septal Myectomy surgery????

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Replies to "Hi my name is Jinal. My husband is 33 years old and was diagnosed with HCM...."
Cynaburst, Alumna Mentor | @cynaburst | Nov 14, 2017

I had a myectomy in 2006. I found that getting home the fastest way possible was best. If you drive, you will have to stop often so he can get out and stretch. I did have some restrictions for a week or two of low sodium. I was also anemic so I had to eat and supplement iron after surgery. I did not have the MAZE procedure, but did have transient Afib after surgery which subsided in the weeks after surgery.

I wrote a blog about my myectomy experience which you can read. It is here: http://www.cynthiassummeradventure.blogspot.com

I also write a current blog with alot of resources about myectomy which you may want to check out:

http://www.hcmbeat.com/resources/resources-for-patients-about-myectomy/

Wishing you all the best.

P.S. if you are on Facebook, there is a Mayo HCM Community on there where you may find more patients.
https://www.facebook.com/groups/MayoClinicHCM.Patients/

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