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Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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mono21 | @mono21 | Dec 30, 2024

I still haven’t had an appointment yet for a CT. It’s been 6 months.

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roz0606 | @roz0606 | Dec 30, 2024
In reply to @mkoch "Thank you for sharing your experience. Sounds like something I could handle. I mean, to be..." + (show)
@mkoch

Thank you for sharing your experience. Sounds like something I could handle. I mean, to be realistic, I can't expect to breeze through it without any side effects at all.

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You got this!!

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elisabeth007 | @elisabeth007 | Jan 1 11:17am

i just had a Meningioma surgically removed after being on watch & wait for almost 8 years

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3 replies
bailey0611 | @bailey0611 | Jan 2 7:27am
In reply to @elisabeth007 "i just had a Meningioma surgically removed after being on watch & wait for almost 8..." + (show)
@elisabeth007

i just had a Meningioma surgically removed after being on watch & wait for almost 8 years

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That’s a long time on w&w. I’ve been 7 years. May I ask your tumors location and did it grow every year? Was it calcified and causing you issues? I hope you have a great recovery.

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jasonl1012 | @jasonl1012 | Jan 2 8:17am
In reply to @elisabeth007 "i just had a Meningioma surgically removed after being on watch & wait for almost 8..." + (show)
@elisabeth007

i just had a Meningioma surgically removed after being on watch & wait for almost 8 years

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When you’re feeling up to it let us know how it went! Get rest, take it easy. I hope you recover quickly and completely! 🤗

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thomhorowitz | @thomhorowitz | Jan 2 11:29am

I had a Glioma that ate most of my right temp. Lobe. 7.5 hrs in o r. No real post op pain. Out of icu in 1 day. Home in4. All that at 74 years of age.

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thomhorowitz | @thomhorowitz | Jan 2 11:32am

A good neurosurgeon is key. Go to a teaching center and be sure attending faculty is themprimary surgeon l

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1 reply
mkoch | @mkoch | Jan 2 12:34pm
In reply to @thomhorowitz "A good neurosurgeon is key. Go to a teaching center and be sure attending faculty is..." + (show)
@thomhorowitz

A good neurosurgeon is key. Go to a teaching center and be sure attending faculty is themprimary surgeon l

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thomhorowitz: Totally agree. This whole process, to be successful, needs to start with a solid foundation, that foundation being an excellent neurosurgeon. Glad to hear of your smooth recovery.

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thomhorowitz | @thomhorowitz | Jan 2 4:50pm

Hardest part of recovery is avoiding all the cliches people feel like saying. The good news is you found it early. As if there could be good in getting a malignant disease?!!?

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1 reply
thomhorowitz | @thomhorowitz | Jan 2 4:52pm
In reply to @thomhorowitz "Hardest part of recovery is avoiding all the cliches people feel like saying. The good news..." + (show)
@thomhorowitz

Hardest part of recovery is avoiding all the cliches people feel like saying. The good news is you found it early. As if there could be good in getting a malignant disease?!!?

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I appreciate people praying for me, but just send over a great fresh fruit pie.

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