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Burning mouth syndrome – anyone else have this?

Skin Health | Last Active: 5 days ago | Replies (44)

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I have suffered with burning mouth, tongue, and tooth for over 4 years. I tested for dental allergies twice, had a root canal where tissues did not look normal and I needed that root canal, had the tooth pulled and testing showed 13 different kinds of bacteria and treated with antibiotics. The burning continued. Treated with hydrocone-act, baclofen, pregabalin, and other medications trial and error. Finally went to emergency room for the burning and swelling throat. Referred to gasterologist who looked at my stomach and esophagus. I was diagnosed with gastritis’s w hyperplasia, reflux, and Barrett’s esophagus. I never knew there was a silent reflux. I always said no to doctors when doctors asked if I had reflux. Treatment started 3 months ago with PPI 40 mg twice daily, allergy reaction to first PPI ended up with Prilosec, took sucralfate liquid 4 times a day. Slowly responded to treatment with burning getting better. After 30 days of treatment able to stop pain pills and pregabalin. Dropped PPI dosage to 20 mg twice a day. Developed a cough so went back to Prilosec 40 mg twice daily and added baclofen to relax esophagus. Cough continued and taking baclofen 5 mg 4 times daily plus 1 liquid Benadryl 4 times daily with PPI and sucralfate. Burning mouth, tooth, and tongue better every day but it was slow. After coughing for a good 45 days and coughing up huge thick mucous from congested lungs, was put on steroid dose pack which improved lung congestion and cough daily but still taking the baclofen and Benadryl daily 4 times. Continue to take Prilosec 40 mg twice daily. Stopped the sucralfate when lungs became so congested. When I notice slight burning in mouth I also chew a pepsid complete tablet which stops the slight burning in mouth. Feeling so much better! Hard to believe how much I have suffered the past 3 plus years with burning mouth and it was silent reflux that had damaged esophagus causing Barrett’s. When Dr. started treatment it was a good 3 to 4 weeks of treatment before I noticed burning pain diminishing. I hope my story helps other Doctors helps their patients. It’s been hard! I feel like I have been given my life back! My specialist retired so now looking for new gastorologist for the Barrett’s. There is hope!

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Replies to "I have suffered with burning mouth, tongue, and tooth for over 4 years. I tested for..."

Hope everything is still working for you. I’m basically having the same symptoms myself .