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Burning mouth syndrome – anyone else have this?

Skin Health | Last Active: 4 days ago | Replies (26)

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@prolapser

Hi, sorry to hear about this affliction. I recently experienced this while being undiagnosed for small white spots on my tongue. They thought Candida but testing showed negative. I have a history of Crohnes so I thought digestion.

I do a lot of research so I started tracking what I ate, drank, and changes to my oral health. The odd thing was if a I drank coffee (which is acidic) it helped. Also, what we eat does not always immediately affect us. It could be something we ate 3 days ago as it goes through our stomach and intestine.

Have you heard of "leaky gut". The lining of the stomach allows bacteria into the body. I started taking L-glutamine to strengthen the lining of my stomach, and it helped. Next, even without test results of candid I did the "paleo type diet.' Take all processed foods out, no sugar, heavy starchy veggies. You might add enzymes to help digestion. Fungus is hard to find sometimes and doctors usually ignore it but it has cursed me 2 times in my life and I have cured it myself. It may take some dilegence but you can't get depressed. Learn to mediate or take slow walks. Aswaganda is good to help with cortisol entering the body (stress produces this). Often it is not just one thing that causes odd illnesses. There is a company call VIOME that test the oral cavity. Also OralDNA and a spit test that tests for fungus and other opportunistic bacteria. There is always a reason. Good Luck. Hope something in this email can lead you some improvement. Blessings!

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Replies to "Hi, sorry to hear about this affliction. I recently experienced this while being undiagnosed for small..."

Thanks for your thoughtful response. In my case, it seems much less about food sensitivity or allergies and much more about emotional status. According to the folks at Harvard and Brigham women’s in Boston, where I am treated, this can afflict individuals after a severe trauma – in my case the suicide of my sister in 2018. Once it has taken hold, it sits in the body and responds to other high levels of stress and emotion that may come along throughout life. I’ve become somewhat accustomed to it and able to deal with it pretty well. The issue with me is that it kicks off anxieties about whether other issues are coming into place such as esophageal comorbidities, etc. So it is a bothersome health anxiety trigger more than anything at this point. Thanks all!