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Starting 17th year with ET. What's ahead?
Blood Cancers & Disorders | Last Active: 13 hours ago | Replies (6)Comment receiving replies
Hi NoHRT4me,
I was diagnosed in 2003 with ET, 22 years now. I seem to be doing pretty well. I have been taking baby aspirin mostly the entire time. I will admit in the early days I did not understand completely how important it was to my health, but of course now I do. I have been on Hydrea since age 60. I am now 70 yo. I get my blood tested monthly and see the Hem Oncologist every 3-4 months. I am active, eat healthy diet and never skip my meds or antioxidants or probiotics. My weight is within the normal range. I also do take HRT and have been on this since age 54, this has been key to my mental and physical well being. If you have and questions or comments please reach out and all the best to you in 2025.
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Hello Lynnevb, I was diagnosed in 2008 with ET and have been on Anagrelide for that amount of time. No side effects at all, so pleased with that. Also, on 100mg of aspirin per day. Just before Christmas, I had a Bone Marrow test and am getting full results tomorrow when I see my new hematologist . Also, on a small dose of HRT. I have diabetes 2 and have blood tests every 3 months, for diabetes and ET. Feel like a pin cushion. Don't get sick over Christmas, my GP just phoned me today, second call, regarding extremely high platelets. So, on 300mg x 2 a day and starting Hydrae. Have been on Hydrae and extra aspirin for 4 days and platelets have gone up again. They have gone up because I had not been on any tablets for ET for 5 weeks. Due to Christmas and new hematologist and Bone Marrow test, hopefully they will get a proper treatment plan in action tomorrow, fingers crossed.