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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)
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@choochoo

Did your doc try alcohol abrasion before a heart transplant?

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Replies to "Did your doc try alcohol abrasion before a heart transplant?"
77dhowell | @77dhowell | Jul 14, 2017

No I have apictal type. My bottom of my heart is thick and it won't open up to let enough blood in. None of the typical treatments work for my heart.
My choices were heart Transplant or hospice.

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Cynaburst, Alumna Mentor | @cynaburst | Jul 16, 2017

@77dhowell - Have you been evaluated at Mayo Clinic? They do a surgery called an apical myectomy which can help people with apical HCM. Mayo is the only place they do the surgery, and it has done miracles for some people with apical HCM.

Here's a video you can watch:

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Choochoo | @choochoo | Jul 16, 2017

My husband has obstructive HCM. They usually do alcahol abrasive surgery for it. He has trouble with the blood getting out. Tomorrow we follow up with PA.

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janicepike | @janicepike | Jul 16, 2017

Love it, after 6.months.out. very grateful...

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Jul 17, 2017

Hi @choochoo,

How did your husband's appointment go? Do let us know of any updates.

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Choochoo | @choochoo | Jul 18, 2017

They are not going to do anything right now. They will moniter him for the time being. If things get worse they will see him again. Thanks for info on my kids for getting an echo instead of finding the gene. They recommended we get echo for the kids too. They will treat with meds as well. That's it. I will keep u posted.

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