← Return to Essential Thrombocytosis symptoms

Discussion

Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: Jan 2 10:29am | Replies (79)
Comment receiving replies
@eileen11108

@bchampagne62
2000 mg daily of Hydroxyurea seems like an extremely high dose. My suggestion to you is to get a second opinion from an MPN specialist even if you have to travel.

Jump to this post

Replies to "@bchampagne62 2000 mg daily of Hydroxyurea seems like an extremely high dose. My suggestion to you..."
janemc | @janemc | Jan 1 7:37am

Agree . . . 2000 mg a day for 20 years?

I have read that HU can lose its efficacy with prolonged use, so maybe your oncologist has been increasing your dosage over time?

But to me it seems a better strategy would be considering alternative treatments for your ET.

As Eileen says, find an MPN specialist for a second opinion.

Do you have a good dermatologist keeping a close eye on your skin? Many lesions can be fairly easily removed, if caught at an early stage.

Let this be a reminder to all of us. HU makes us more vulnerable to skin cancer. Use a mineral-based sun cream, wear a sun hat, cover as much of your skin as possible when you have to be in the sun.

bchampagne, let us know how it goes.

VIEW AND REPLY