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Ground Glass Nodule

Lung Health | Last Active: Jan 2 6:55pm | Replies (15)

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@churlgurl

I have similar situation. Did have the biodesix blood test done in September. They came to my house to do blood draw and results take approximately 5 days. Mine came back mid range, so neither negative or positive. Basically not solving the anything. This mass (spiculated) more than doubled in size at last CT (5 months ago) and now in high 2cm range. After biodesix test everyone just kind of forgot about me, despite my attempts to get answers as to whether I have cancer or not. I am a bronchietasis,mycobacteria, gerd patient with history of previous lung surgery to remove questionable growing nodule in 2018. That entire section of my lung that was removed was sent to lab. Four days later mycobacteria diagnosis confirmed. I had been very, very sick for four years that time, prior to surgery. Been on airway clearance ever since. This mass is not causing similar symptoms I had with previous episode. Mass is also much larger than previous one removed. The lack of mycobacteria symptoms makes me believe this one is cancer. However, very slow response to figuring this out. Now 5 mo. later I am being referred to UPenn. Amazed and frustrated I have been left wondering for 5 months! Had no respiratory symptoms last time. This time major respiratory problems progressively getting worse. Yesterday told by primary physician that my lungs sound like “shit” and he could not even hear my heartbeat due to lung noise being so loud. He did start two meds and wants me back in office Thursday and told if no better would have to intubate me. I am not happy! I am 69 yrs old and have entered the stage where I am invisible and get ignored regularly. Feel I am where I am medically due to their neglect, not mine. So tired of fighting for health care.

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Replies to "I have similar situation. Did have the biodesix blood test done in September. They came to..."

Hoping you had a good and positive meeting today at your GP today..I am so sorry to hear you have felt ignored after your Biodesix blood came back and gave no definitive answer..
Thank goodness you have now been referred to UPenn and hopefully that appt is soon.
Try not to jump to any conclusions as it could be mycobacteria recurring but you need tests to find out what this approx 2cm nodule is and need them ASAP..Wishing I could be of more help as this is a frightening situation and thankfully your GP is aware of all. Thinking and praying for all good results