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Why Camzyos instead of surgery?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 5 days ago | Replies (31)Comment receiving replies
Hi and thank you so much for this valuable advice. I had a heart biopsy about 10 days ago and got all the results by last Thursday and the cardiologist from Hopkins called today. I have no amyloidosis - and am very grateful for that. I do have an obstruction as I knew and a high gradient and pressures (not sure how to describe this). The doc is starting out with a calcium channel blocker called verapamil and jardiance. And then we will see how well I tolerate those and whether or not I move on to Camzyos. He said the obstruction itself was not large but the gradient was 60.
Replies to "Hi and thank you so much for this valuable advice. I had a heart biopsy about..."
I was on verapamil for many years after HCM diagnosis with no side effects (can't remember the dosage, maybe 25mg once daily). From the time when conditions made it essential for further intervention, I was prescribed a much higher dosage (200 mg twice a day? I don't remember). The result was a side effect that Metamucil and a high fiber diet barely helped.
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What a relief @joycehocm! I know that must have been a heavy thought burden thinking amyloidosis was the culprit! When you learn about that disease...it would feel so dark and scary to think this could what is going on. Thank goodness you don't have it!
I am so glad you came back to share with the group. I hope you keep coming back and share your progress.
Happy New Year!