Hyperparathyroidism caused osteoporosis--now what treatment?

Go on Youtube. There is a mountain of information on the parathyroid glands (4 glands 2 B exact). What I've learned is that if there is a tumor, it may or may not show up on a scan. There was one surgery where only 1 turmor showed on the scan, the 2nd tumor was hiding. It's a 15 minute day surgery with about a 1" incision. I wish this site would allow links bt it doesn't. Go to youtube.com ... ALWAYS BE PREPARED B4 MEETING W/UR DR. WITH ALL SURGERY THERE R RISKS. The vocal chords are very close to the parathyrid glands. This is the video U will want 2 C ... Parathyroid Operation: State of the art Surgery in 13 minutes by NORMAN PARATHYROID CENTER ... Some of the symptoms I've had for years bt those symptoms mimic other possibilities as well. Best blessings on your journey ...

Hi @closetmonster93 - Hypercalcemia with osteoporosis screams primary hyperparathyroidism. While there are other causes you need to check out, the odds are here.

I put together a video segment on hyperparathyroidism based on Dr. John Bilezikian, who is a top osteoporosis doctor. You can watch the segment here https://youtu.be/xKNdqISXkFY?si=80l-T3gQ7iDvVxMw&t=2205 . The entire video should be helpful but this link is to the segment on hyperparathyroidism.

Thank you, I will utilize this information.

This is incredibly important information. Also, what kind of doctor do you have treating this condition, and what exact tests does one take to get to the bottom of this? I had a scan however my Internist said it looked normal, but my labs are anything but normal, and continue to get worse. The calcium continues to rise, and I am thinking it is also causing many other issues. I just dont understand. How does something like this happen, and why are doctors so quick to drop the issue, when the labs show something wrong?

Well, mine tested November 2024 was 113, before then June 84, February 103, October 2023 74, and May 2023 it was 90. I am wondering if I should see an endocrinologist as my primary does not seem to think it is an issue??? As you said yours was in the 80's and it was an issue for you.

I currently have osteopenia, and I refuse to take any of the bone pharmaceuticals as most all make your bones brittle. I believe Tymlos may be different as it is an anabolic so it is supposed to build bone. My gynecologist prescribed testosterone cream as it increases bone formation by increasing the formation of osteoblasts which are the bone builders. Perhaps you could inquire about that method.

You need to see an endocrinologist as soon as possible. Hyperparathyroidism does it's damage slowly and silently and will continue to leach calcium from your bones until the condition is treated with a simple surgery. Hyperparathyroidism is also a major risk factor impaired cognitive function and dementia.

Thank you. I have an appointment in February in Tampa/FSU

Hello @csjxvcsjxv

Have you had an ultrasound or CT of the neck to check on the parathyroid gland? If not, when you see the endocrinologist, you should ask about one of these tests.

I look forward to hearing from you after your appointment. If you have any other questions in the meantime, please post them. Many of us in this discussion group have both hyperparathyroidism and osteoporosis.

I did have one earlier this year which indicated secondary hyperparathyroidism. Likely cause I only have one kidney received as a deceased donor transplant 2 years ago. I have osteopenia. Am wondering if Endo can do anything about the Secondary PTH.

@csjxvcsjxv
It will be interesting to hear what the endocrinologist has to say about your situation. Being a transplant recipient might change the way your Secondary PTH is treated.

In general, how do you feel?