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How do you cope with Mixed Connective Tissue Disease (MCTD)?
Autoimmune Diseases | Last Active: Mar 4 10:55pm | Replies (149)Comment receiving replies
How did you get them to give you an MRI? I’ve been asking for one but they haven’t yet felt the need to do one. I was diagnosed with mctd in Sept but have been having brain fog and fatigue for years now and Ive been on hormone replacement therapy so I don’t think it’s related to perimenopause,
Replies to "How did you get them to give you an MRI? I’ve been asking for one but..."
If you are living in Canada, it is difficult to get an MRI because you always need a doctor’s - often a specialist’s - referral and even then it is difficult to get one because our government health plan won’t pay for one unless it is ordered as a last resort. I have been asking doctors for one for years without success. The most they will do is a CT scan but only if an Ultrasound proves inconclusive.
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I have been having chronic migraines for years and the migraine medicine doesn’t help. Then in May of this year, I started having strange body sensations….what you would expect from an MS diagnosis. It’s a strange tingling followed by a tightening and pulling in that area. I’ve also had muscle fasciculations for almost 4 years that the neurologist originally thought were “benign”. also have Raynaud’s and a whole bunch of other things. All of this together added up to the need for a brain MRI.