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Hemoptysis - wonder what others do

MAC & Bronchiectasis | Last Active: 2 days ago | Replies (61)

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@cayenne

Karen, I have dealt with hemoptysis for years now and understand how frightening it can be. The fear of it was the worst when I started the three drugs a few years ago and had an episode early on. What helped during that time was slow and steady breathing, exhaling through the mouth. I also put my hands on my chest to help calm things down. Those things still work for me today.
It’s also scary because the cause can be unclear. My pulmonologist used to tell me that it was always a sign of infection. But other doctors have said not necessarily. When I have an episode I always rest as much as I can and it resolves in a couple of days, or up to a week. Knowing that it has resolved in the past helps me through it.
There are a couple of good resources - one is a podcast by Dr. Swenson and another is a video specifically on this topic, sorry I can’t remember the doctor’s name, but it was within the past year or so. Maybe someone else can chime in here.
I’m sorry that you’re going through this and hope you find some coping strategies soon.

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Replies to "Karen, I have dealt with hemoptysis for years now and understand how frightening it can be...."

Cayenne,
Thanks so much for all the good advice and information. I will definitely try your calming method. I really appreciate all the caring help. Best wishes to you for a Happy New Year. Karen

A youtube video specifically on hemoptysis that was recommended on this site is the following: Dr. Mark Metersky from the Connecticut School of Medicine. Very helpful.


It might be wise for your doctor to order a CT scan if you have not had one since your bleeding started to confirm that it is only irritation of blood vessels and also to inform you as to where your bronchiectasis is most prevalent. This can help tremendously in what you do to help yourself. I agree that you should rest more and not do dramatic air clearance while spitting up blood. Your little blood vessels need a break from vigorous airway clearance for a bit. You may want to consider only proceeding with gentler exercises like Active Cycle of Breathing, Autogenic Drainage (which is so similar to the ACB), exercise, particularly of the upper body, walks in fresh air--until you have stopped bleeding. I now have intermittent small bleeds as of the last year and my doctor has advised me to stop the Aerobika during those episodes as well. As someone in the very small minority who had a massive hemoptysis and almost died from it ( I have a history of TB in my youth), I am learning to listen to what my body needs, when it is overstressed, etc. I don't trust violent coughing or too intense huffing at any time b/c of my history but we're all different. Drinking very warm water all day has really worked to thin my secretions as has eating mostly soups. I supplement with liquid minerals because of the copious amount of water I drink.

I still struggle but am learning something new every day.

Wishing you all the best on this journey. We are all in it together though our conditions all have their particularity.

Aida