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Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: Jan 2 10:29am | Replies (79)
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@bchampagne62

I take hydrea 2000 mg a day for 20 years know getting skin cancer. I don't know what else to take since this has been keeping me alive but know side affect is this. Hematologist has no answers ..
Don't know where to turn any suggestions

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Replies to "I take hydrea 2000 mg a day for 20 years know getting skin cancer. I don't..."
eileen11108 | @eileen11108 | Jan 1 7:23am

@bchampagne62
2000 mg daily of Hydroxyurea seems like an extremely high dose. My suggestion to you is to get a second opinion from an MPN specialist even if you have to travel.

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nohrt4me | @nohrt4me | Jan 1 9:32am

You might ask your doc about anagrelide, Jakafi, or Pegasys if you are maxing out on HU. If he draws a blank on these suggestions, I agree it's time for a second opinion. These side effects can become more discouraging than the disease. It's hard to get doctors to address quality of life sometimes.

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