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Essential Thrombocytosis symptoms
Blood Cancers & Disorders | Last Active: Feb 13 1:02am | Replies (170)Comment receiving replies
I take hydrea 2000 mg a day for 20 years know getting skin cancer. I don't know what else to take since this has been keeping me alive but know side affect is this. Hematologist has no answers ..
Don't know where to turn any suggestions
Replies to "I take hydrea 2000 mg a day for 20 years know getting skin cancer. I don't..."
You might ask your doc about anagrelide, Jakafi, or Pegasys if you are maxing out on HU. If he draws a blank on these suggestions, I agree it's time for a second opinion. These side effects can become more discouraging than the disease. It's hard to get doctors to address quality of life sometimes.
Have you had a bone marrow biopsy to be sure that what you’re dealing with is ET and not another myeloproliferative issue such as MF or PCV? You may want a second opinion. My Dr originally diagnosed me with ET based on blood work, but similarly Hydroxurea was not keeping my platelets down. I sought a second opinion and was referred for bone marrow biopsy, I have Myelofibrosis, not ET. This is from what I understand a common misdiagnosis.
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@bchampagne62
2000 mg daily of Hydroxyurea seems like an extremely high dose. My suggestion to you is to get a second opinion from an MPN specialist even if you have to travel.