← Return to HCM-ers: Introduce yourself or just say hi

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@margie11

Hi, I'm interested in joining this community because my father had a triple bypass with a septal myectomy 5 years ago at the age of 78. His 9 and a half hour surgery was performed at Columbia Presbyterian, where he had an 8 day stay. A year later he underwent an Abdominal Aortic Anyurism Repair, also at Columbia, for a AAA that was discovered a few years prior to his HCM surgery (it had grown to a dangerous size). He's now 83 and in very good health, doing all things he did even 20 years ago. He's always been very active, all his life, follows the Mediterranean diet (he's from Italy). He does have a sweet tooth but never over indulges, just a little bit is fine, and he scrapes the frosting off of birthday cakes "It's too much" (the doctors got a chuckle when they heard that). Unfortunately his brother and a few other male relatives who were also active and in good shape passed away from heart disease, and we often wonder if perhaps they also had HCM. It's so important to get treatment from doctors and hospitals who have great experience with HCM, like those from Mayo Clinic, etc even if you have to travel. If you can't travel, then maybe you can ask your doctor to confer with a doctor from a major hospital? I wish everyone here the best of health and success in their HCM journey.

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Replies to "Hi, I'm interested in joining this community because my father had a triple bypass with a..."

Hey Margie, thanks for telling the group a bit more about you. Your story about your father and other male relatives reminds me of @cynaburst's story that she shared about her father and uncles in this webinar with Dr. Dearani. You and the others in the group might be interested in watching it.

Physicians, Patients & Rare Diseases on Social Media http://mayocl.in/2fhxwyC
Presented by Dr. Joseph Dearani, Chair of the Division of Cardiovascular Surgery at Mayo Clinic and Cynthia Burstein Waldman, Patient

I have been involved in HCM for the past 10 years and those folks I have met who did not have theirs done at a high volume center have a higher incidence of a second surgery or they never got the relief they sought. Your father sounds like a great guy - glad he doing well.

Thanks Colleen, I'll watch it soon! You know our family had never heard of HCM before my father was diagnosed, so it was all quite scary to us. It's one thing to hear advice from a doctor, but quite another thing to hear about first hand experiences from patients. What a wonderful thing this forum is, thanks for creating it.

Thanks mbcube, we're grateful he's doing well. I look forward to your advice on HCM, with your experience it sounds like you're going to be a good resource here!