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Transplants | Last Active: 1 day ago | Replies (15)
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His last transplant he said he wasn’t supposed to be here and was an angry person. He had what was called recall so when they did the transplant he was paralyzed but not sedated enough and could tell us what music they listened to what they were saying the sound of the saw. The trauma is very real and I don’t think addressed enough or supported enough with the patient or the family. To expect these changes. You are human and those thoughts even with a transplant of depression are okay. I would find someone to talk to maybe to process the trauma. My son has dementia and sometimes I thank god for that because his he forgets most of it now. I am interested in hearing more about your journey.
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@cmccall813, your post reminds me of a few older discussions, while not the same, there are overlapping elements.
@lupedelarosa12, spoke of her son's behavior changes related to the treatments involved in heart transplant:
- Heart transplant: recovering but steroids are affecting behavior https://connect.mayoclinic.org/discussion/heart-transplant-231a15/
And others have discussed changes in personality too:
- Anyone experience personality change post solid organ transplant?
https://connect.mayoclinic.org/discussion/personality-change/
And then there is post intensive care syndrome, which can be experienced by both or either patients and family members.
- Post-Intensive Care Syndrome (PICS) - Let's talk https://connect.mayoclinic.org/discussion/post-intensive-care-syndrome-pics-lets-talk/
@cmccall813, I like the title that you chose for this discussion "Grief of Transplant", which differentiates it from the discussions linked above. While you accept your son's complex medical care and how it has and continues to affect him, you're recognizing the loss as a parent. It is a loss that deserves acknowledgement and self-caring. Yes, you soldier on as mom and caregiver. But you permit yourself time to grieve.
Thank you for opening up this space to share your thoughts and to give people a place to share theirs.