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@jrwilli1

I know exactly what you are talking about. It is very hard dealing with one disease let alone more than one. The Parkinson’s doesn’t know how to handle another health problem so it acts up. At least that is what I was told by our neurologist. Check out some of his medicines because they might be making him dizzy. We had to stop propranolol because it was lowering his blood pressure. He also had the GVHD but just acute and has been left with low sodium for which he has to take meds. You get rid of one med and get another. He also got CDiff during that time so he was an absolute mess. I was at wits end and had to call in reinforcements. He couldn’t hardly walk to bathroom and was so weak. I got a night person to help out and a bed alarm so they knew when he was up. He was very confused and when he did get better he was very upset with me for this. But I couldn’t do it on my own. No sleep isn’t good for you. Please give yourself credit for taking such good care of him. I would recommend when he can get out to check out some Parkinson’s exercise classes. He has meet so many other people and really looks forward to going to them. There was a point when he couldn’t drive because his platelets were to low and he was devastated but I drove him weekly. Now he can drive to his classes. Hopefully, this is your last setback. Each day at a time. You can do this. Sorry for book

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Replies to "I know exactly what you are talking about. It is very hard dealing with one disease..."

Hi there, thank you for your info. This is very new to me reaching out like this.
I’ve….. had a tough time trying to explain things even to family. All I can do is give them the facts of what’s happening. I’m not new to the caregiving end of things, I think I was just being primed for what is going on now but I’m realizing that nothing can really prepare us for whatever happens tomorrow.
He has appts next week with more tests so…we’ll see how that goes. I guess I just needed to vent my thoughts.