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Aspirin sensitivity and polyps with AERD

Ear, Nose & Throat (ENT) | Last Active: Nov 27, 2023 | Replies (18)

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@squirt0104

Hi. I was diagnosed AERD April 27, 2020.
I started having symptoms of severe skin reactions on my face in about 2018 that the dermatologist couldn’t determine cause or find a treatment.
Had had frequent rhinitis/sinus problems over the years and seemed easily susceptible to colds. Then in the fall of 2018 started with a cold, then respiratory flu, then bronchitis, and ridiculous amounts of coughing and never getting better from all the antibiotics and brief relief from prednisone while in it, but symptoms return after course. In May of 2019 they diagnose me with severe asthma at 56. ( never had before and doesn’t run in family) after months of treatment on daily inhalers and not much better went to Mayo and for another opinion and AERD was identified. I had put the ibuprofen connection together after noticing symptoms worse upon taking them. Took them for years for fibromyalgia. I also have an auto immune disease called Alopecia Areata. My question is do most people feel like crap all the time like I do? Even off aspirin. My symptoms are...
-skin rashes - constant headaches-chronic rhinitis/sinusitis-moderate asthma-total body aches and soreness- newly developed tinnitus- loss of smell and taste- weird taste in breath ( not metal)- fatigue - confusion and loss of words. Thank you for open forum of sharing info!

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Replies to "Hi. I was diagnosed AERD April 27, 2020. I started having symptoms of severe skin reactions..."

Hi, @squirt0104 - welcome to Mayo Clinic Connect. Sounds like it's been a long road to finally get a diagnosis of aspirin-exacerbated respiratory disease (AERD), or Samter’s Triad. Sounds like you were persistent and observant in getting to that point.

I'd like to point out some reputable information on AERD from the American Academy of Allergy, Asthma & Immunology https://www.aaaai.org/conditions-and-treatments/library/asthma-library/aspirin-exacerbated-respiratory-disease. I'd also like to invite @glj86 @emaria back to this discussion and ask if @lioness @becsbuddy @brightwings might join to provide you some support as you deal with these symptoms and to offer any input they may have. I'm not certain if @imallears @johnbishop are familiar with AERD, but they also may be able to provide some information and/or support.

Feeling like cr&p all the time, even off aspirin, would be very hard. Are there any medications, other treatment or self-care practices that have brought you even temporary relief from your symptoms (tinnitus, weird taste in your mouth, fatigue, confusion, loss of words, headaches, rashes, aches, soreness, rhinitis and sinusitis, etc.), squirt0104?

Hi, @squirt0104 That sounds like a difficult disease to deal with. I found this site that explains it well and also talks about a Facebook support group. https://www.samterssociety.org/about-aerd I was interested in the aspirin desensitization and wondered if you had tried it. Are you able to cope with this on a daily basis?