Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2, 2024

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@tessie63

Can the Aspercream lotion be used on hands? I have severe pins and needles with terrible numbness in them and nothing I’ve tried seems to help this. My hands feel so strange. It’s like they have a coating on them. It’s best described like when you bread a chicken leg and there are crumbs all over them. That’s how my hands feel. I had chemo treatments a little over four years ago and my body took on an autoimmune illness GBS. This did so much damage to my hands and feet that they are irreparable now so any potions and lotion that would work I’ve pretty much tried them all except the Aspercream lotion.

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@tessie63 sounds like you have the feeling of having gloves, or socks on when you don’t.
I get that on my feet.

I have awful arthritis in both hands. I sometimes use the Aspercream on my fingers.

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@hunt

This may sound a little strange but I am using a CVS Pharmacy product called:
Hemorrhoidal Relief Cream. Like Aspercreme it contains Lidocaine.
But it contains 5% whereas Aspercreme is 4%. My neuropathy is mainly
in my legs below the knee, so I creme up and am getting some relief.

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is the hemmhoroid cream providing relief from pain? or numbness?

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just started using Hemp EMU. No results yet/ I'll wait a week and post results.
If any body has used Hemp creams please comment on your results

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The hemorrhoid cream 5 % Lidocaine is useful for me only on the neuropathic pain. I don't even have a good name for this type of pain. I am trying the suggestions of users on this thread to study the effects. I would try the cream to see if it helps you. It is not too expensive.

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@hunt

The hemorrhoid cream 5 % Lidocaine is useful for me only on the neuropathic pain. I don't even have a good name for this type of pain. I am trying the suggestions of users on this thread to study the effects. I would try the cream to see if it helps you. It is not too expensive.

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thanks for the info

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@paulmaj

just started using Hemp EMU. No results yet/ I'll wait a week and post results.
If any body has used Hemp creams please comment on your results

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Just started using Ananda Professional Topical Salve body balm, 125 mg full spectrum hemp extract. Only used twice - second time it took about a half hour and it relaxed my toes - I don't have pain, just numbness, stiffness and tingling in toes. It was nice to feel them relax. Will keep using it and let you know how it goes.

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My neuropathy was triggered by high levels of B6 . So I learned from this site that there is a supplement with NO B6, and lesser amounts of other vitamins, as most brands overdue.
I’ve been using for the last month. I don’t expect it to decrease the neuropathy, but hope it prevents it worsening , as B6 is a neurotoxin and winds up in nerve cell if not nit eliminated via proper hydration and exercise,

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@peg8842

Just started using Ananda Professional Topical Salve body balm, 125 mg full spectrum hemp extract. Only used twice - second time it took about a half hour and it relaxed my toes - I don't have pain, just numbness, stiffness and tingling in toes. It was nice to feel them relax. Will keep using it and let you know how it goes.

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thank for the info

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@paulmaj

just started using Hemp EMU. No results yet/ I'll wait a week and post results.
If any body has used Hemp creams please comment on your results

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I have not used the Hemp EMU yet but have been using Blue EMU, which is somewhat helpful for me with feet and lower leg tingling and seems to cool the bottoms of my feet so I can sleep better. I am very interested in hearing if the Hemp EMU works well or not.

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@daves2

Under scams Anyone tried nooro ultimate foot massager SCAM?Anyone tried the nooro ultimate foot massager they claim it works wonders Been trying it for 5 days now nothing so far 15minutes a day twice.

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Boy, I am on the scam list. Yes I got the Nooro EMS foot massager. I bought Nerve Savior. Nope just spent $$$, Too many to mention now. I wear compression socks which help the swelling from venous insufficiency, I have seen three neurologists, foot doctors, physical therapists for balance ( actually the best). I have ideopathic foot (progressing sice 1990) and hand (newer) neuropathy, I have severe balance issues so thats why the PT. I am 85. I have taken gabapentin (made me dizzy), so no. Last time the PA said to try Duloxetine 30 mg and it made me dizzy. I take monthly injections of Vitamin B12, take B6, Magnesium glycimate, Fish oil, ALA, Vitamin D, Potassium. I even asked a neurologist in Vegas about stem cell. He seemed not to know about it. Its strange, but I have very little pain, just numbness and balance issues. I use a rolling walker byAcre.

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