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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 20 hours ago | Replies (104)Comment receiving replies
Good morning, I was diagnosed Nov 2022 with ET. Taking 1000 mg
Hydroxuria daily. Feel great, used to be tired in the afternoon, not so
much anymore. My platelets are stable in the 350 to 390 range.
Female, 69 years old.
Had total Hysterectomy 6 weeks ago. I looked up my pre op
blood work, noticed that my Rdw is high, 55 fl , everything else looked good.
10 days before I had my 4 months check up with my Hematologist.
My rdw was 45 fl, everything else looked good. Has anyone had this problem?
I do not take any other medications.
My next check up is not until the end of Febr. 2025. With the Christmas
and new Year season it is hard to get a hold of anybody. Will contact
my Dr. after new year.
Thank you for reading my post.
Replies to "Good morning, I was diagnosed Nov 2022 with ET. Taking 1000 mg Hydroxuria daily. Feel great,..."
Yes, I also have high RDW. Doc said it's because the HU "excites" the blood system, and it's nothing to worry about. I ignore it now.
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On another forum, I saw postings from individuals taking HU for ET, who have seen high RDW values in their blood work.
When they asked their doctors about it, they were told it that may be a side effect of HU, and not a cause for concern -- but maybe an indication that taking a multivitamin could be helpful.
Of course, only your own doctor can evaluate what the higher RDW count may mean for you.
I hope you won't have to wait a couple more months before having your question answered. It's impossible not to worry when we get "off" numbers.
You've been through a lot! To better days ahead.