← Return to imetelstat/Rytelo MDS treatment anyone?

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imetelstat/Rytelo MDS treatment anyone?

Blood Cancers & Disorders | Last Active: Dec 29, 2024 | Replies (3)

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@marco88

Also looking for Rytelo information. It’s so new we may not get much for experience on this.

My husband with MDS 5q deletion for seven years has been treated with Procrit/Retacrit, Vidaza (azacitidine), and Revlimid; all failed after months/years. He is now only partially sustained with Procrit/Retacrit and we’re hoping Rytelo may prove useful.

His hematologist so far says “maybe”. I wish you well in your quest for treatment, and hope you will share what you learn and your experience with Rytelo. Thanks!

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Replies to "Also looking for Rytelo information. It’s so new we may not get much for experience on..."

My husband’s hematologist also said “maybe.” I wish you & your husband all the best & I will share what I learn…his 1st treatment is 1/4/25.