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Hairy Cell Leukemia

Blood Cancers & Disorders | Last Active: Apr 10, 2023 | Replies (39)

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@colleenyoung

Thanks for sharing your remarkable story @dustedeagle. Good for you for being your own advocate and doing your research.
You are quite right, there are a number of infections and diseases may cause an enlarged spleen (splenomegaly), including:
- Various types of hemolytic anemia — a condition characterized by early destruction of red blood cells
- Blood cancers, such as leukemia and myeloproliferative neoplasms, and lymphomas, such as Hodgkin's disease

The enlargement of the spleen may be temporary, depending on treatment. As you chose, watchful waiting is often a recommended treatment. See a complete list of causes and possible treatments here on MayoClinic.org http://mayocl.in/2ijpVjK

Bob (@rllarocca) have you had any issues with your spleen? Anything to share with dustedeagle?

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Replies to "Thanks for sharing your remarkable story @dustedeagle. Good for you for being your own advocate and..."

My doctor said my spleen was enlarged both times my HCL was active. I am back in remission for the second time, after my second round of chemo. It is my understanding that an enlarged spleen is usual with HCL. At one time removal of the spleen was a usual treatment for this.