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Fibromyalgia pain: Let's connect
Fibromyalgia | Last Active: Oct 31 9:08am | Replies (1334)Comment receiving replies
Lacy, Lioness & all,
Not sure I’m replying in the right spot but I have a suggestion/idea...Lacy think about having someone who can help you with your calendar/schedule like another family member (other than your recovering husband) friend or professional? Sounds like you have a system which is good but having another person or advocate to help will take pressure off you (maybe local health advocate).
Internal tremors I wish we both could figure out. Keep asking every doctor/nurse you communicate with in hopes one will be of help. Stressful times or heightened stress can also bring about lots of symptoms. I’m so sorry your day was so hard. The weather is warming up here in the Midwest and it sent my CRPS into high pain mode today (always a huge issue but warmer weather or rain puts me over the edge). And that’s only 1 of the many many health issues but we all deal with so much.
Keep us informed & hugs to you both & to everyone in pain.
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rachel6 thank you yes its been a long haul for me as well and overwhelming now at 77 i may have said before and sure dont like to leave my family but i am not as scared of dying but of suffering and being out of control and making my decisions and not having someone make them for me is important to me... it may sound selfish but I have a limit to my pain and other issues...and while I honestly and wholeheartedly understand there are many with heavier burdens than mine, I cant spend another summer as the past 3 in my room mostly although i am able to go to dr appointments etc., as I think I started a chat site: Is it Depression or Demoralization and for me its the latter and I can see no light at the end of the tunnel and I just wish has the inner strength of many others who fight through all this.... I just dont have the strength any more and if it were not for the odd hour here and there of some almost normal feelings, well......