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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 20 hours ago | Replies (104)Comment receiving replies
For what it’s worth…I am 91 and have been on Hydrox since 2020 with varying amounts daily. Initially I was also on one baby .81 aspirin a day. I am also on Eliquis. I had been taking one baby aspirin daily for probably 40? years when last year my gagle of docs urged me to drop aspirin. They claimed I was at high bleeding internal risk if I fell. I was hesitant to do so but I have listened to Mayo doc since mid-nineties and now that I am in Phila. also have oncologist at U. of Pennsylvania so do what I’m told! Main problem is hydro not only kills excess platelets but knocks down blood cells delivering ovygen so as to create tiredness etc, But hey, most people I know are tired at 91!! My doc would rather me have platelets in 600-700 range than be anemic! Anybody else over 90? My PA doc says he has two patients on hydrox over 100! Hmmm
Merle
Replies to "For what it’s worth…I am 91 and have been on Hydrox since 2020 with varying amounts..."
Yes, being anemic has really caused too much tiredness. I have always been high energy. Playing tennis and golf. This, before ET. My last platelet count was 432 and has stayed in that area for months. I love that your doctors opinion that 600-700 range rather than being anemic is ok. I am in NC but may go to Mayo Clinic Thanks for your reply
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Other knowledgeable voices here have also questioned taking daily aspirin. This is a great question for each of us to bring to our own doctors.
For what it's worth, in my case (70 years old, platelets 500/600), I was recently told to continue with the low-dose aspirin.
I'm glad your doctor is carefully considering exactly what's best for you, Merle. Platelets are not the only important metric.
Wishing you 90 more years!