oh yes. if my feet aren’t on fire burning then they are very cold. i usually have several blankets on my feet while home on the couch and when i go deer hunting and am out in the cold in my blind i have to have a couple of of propane heaters going also sometimes it not hot or cold feet it’s just plain ole pain on my feet i’ve been taking 15mg morphine for the last 20 years or so. that seems to be the only relief i get they normally feel pretty good first thing every morning and just get worse as the day goes on and way worse by bedtime
oh yes. if my feet aren’t on fire burning then they are very cold. i usually have several blankets on my feet while home on the couch and when i go deer hunting and am out in the cold in my blind i have to have a couple of of propane heaters going also sometimes it not hot or cold feet it’s just plain ole pain on my feet i’ve been taking 15mg morphine for the last 20 years or so. that seems to be the only relief i get they normally feel pretty good first thing every morning and just get worse as the day goes on and way worse by bedtime
John, Volunteer Mentor | @johnbishop | Dec 27, 2024
@blessedsista24, The cold feet and hands with neuropathy are definitely not much fun. I do have more problems with it during the winters. I use the stick on insole foot warmers attached to my bottom of my feet onto my socks during the coldest days. I also slip on a neoprene toe warmer sleeve that covers the toes and part of my foot which keeps the toes from getting too cold on the bad days - https://www.amazon.com/gp/product/B076B3VTRM.
also my morphine drs have been trying to get me to try a spinal cord stimulator for my feet and leg pain. i’m 69 years old and i just don’t have any faith that it would work has anyone tried this and did it work or help or was it another waste of time. thanks
From what others are posting, you're most likely getting the impression that cold hands and feet as neuropathy symptoms are darn near universal regardless of an individual sufferer's "brand" of neuropathy. Mine is idiopathic large-fiber (no pain, but big-time balance problems) polyneuropathy. I'm vexed by cold hands and feet (overall body-chill, to be honest), a symptom that's most obvious to me and my friends in the spring and fall when my friends are enjoying mild, balmy temps and I'm sitting at the dinner table wearing a mid-winter sweater. Across from me at the table will be my friend Rachel, whose neuropathy is chemo-related, also wrapped in a double-knit sweater. So many of us are alike in this.
Here's wishing you the best possible New Year!
Ray (@ray666)
From what others are posting, you're most likely getting the impression that cold hands and feet as neuropathy symptoms are darn near universal regardless of an individual sufferer's "brand" of neuropathy. Mine is idiopathic large-fiber (no pain, but big-time balance problems) polyneuropathy. I'm vexed by cold hands and feet (overall body-chill, to be honest), a symptom that's most obvious to me and my friends in the spring and fall when my friends are enjoying mild, balmy temps and I'm sitting at the dinner table wearing a mid-winter sweater. Across from me at the table will be my friend Rachel, whose neuropathy is chemo-related, also wrapped in a double-knit sweater. So many of us are alike in this.
Here's wishing you the best possible New Year!
Ray (@ray666)
Yessss especially when you go to Hug someone and grab their hands and they say ewww your Hands are freezing 🥶 and i say Cold hands Warm heart ❤️.
But my poor feet freeze all the time and don't let the covers in the bed touch them 🙄😫. But socks help at night with Cramping. I just found out I have PN .now i know why when
was standing at work for 10 hours my legs and feet felt like bricks 😫.
Praying for A Better year for all.
I have cold feet and calves as well and no surprise, it is where the neuropathy is the worse and I've had this for about 8 years. It started in the feet and as the PN progressed, it worked its way up to the top of the calves.
It’s so nice that newer cars let each passenger control their heat and vents, because I otherwise am very bothersome to others in my need to direct air or heat to my extremities at any given time. I’ve had to walk out of establishments because of how painfully cold and numbing they are on my hands and feet despite my thick socks and gloves in the middle of summer. Extreme heat can be intolerable too. It takes awhile to thaw or cool when the temperature affects happen.
All said, before Gabapentin, it was 10 times worse. I couldn’t escape it all day long. I couldn’t sleep for long because of no physical way of heating or cooling my feet and hands comfortably. It doesn’t work for everyone, but Gabapentin has helped normalize the heat/cold extremes and I only have major discomfort when induced by temperatures outside my control.
It’s so nice that newer cars let each passenger control their heat and vents, because I otherwise am very bothersome to others in my need to direct air or heat to my extremities at any given time. I’ve had to walk out of establishments because of how painfully cold and numbing they are on my hands and feet despite my thick socks and gloves in the middle of summer. Extreme heat can be intolerable too. It takes awhile to thaw or cool when the temperature affects happen.
All said, before Gabapentin, it was 10 times worse. I couldn’t escape it all day long. I couldn’t sleep for long because of no physical way of heating or cooling my feet and hands comfortably. It doesn’t work for everyone, but Gabapentin has helped normalize the heat/cold extremes and I only have major discomfort when induced by temperatures outside my control.
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oh yes. if my feet aren’t on fire burning then they are very cold. i usually have several blankets on my feet while home on the couch and when i go deer hunting and am out in the cold in my blind i have to have a couple of of propane heaters going also sometimes it not hot or cold feet it’s just plain ole pain on my feet i’ve been taking 15mg morphine for the last 20 years or so. that seems to be the only relief i get they normally feel pretty good first thing every morning and just get worse as the day goes on and way worse by bedtime
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5 ReactionsThanks and good luck with hunting.
I used to deer hunt. 🦌
It's enjoyable 😉
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1 Reaction@blessedsista24, The cold feet and hands with neuropathy are definitely not much fun. I do have more problems with it during the winters. I use the stick on insole foot warmers attached to my bottom of my feet onto my socks during the coldest days. I also slip on a neoprene toe warmer sleeve that covers the toes and part of my foot which keeps the toes from getting too cold on the bad days - https://www.amazon.com/gp/product/B076B3VTRM.
The Foundation for Peripheral Neuropathy has a lot of great webinar videos on their YouTube channel - https://www.youtube.com/@foundationforperipheralneu4122/search?query=cold%20hands%20and%20feet
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8 Reactionsalso my morphine drs have been trying to get me to try a spinal cord stimulator for my feet and leg pain. i’m 69 years old and i just don’t have any faith that it would work has anyone tried this and did it work or help or was it another waste of time. thanks
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3 ReactionsGood morning, blessedsista24 (@blessedsista24)
From what others are posting, you're most likely getting the impression that cold hands and feet as neuropathy symptoms are darn near universal regardless of an individual sufferer's "brand" of neuropathy. Mine is idiopathic large-fiber (no pain, but big-time balance problems) polyneuropathy. I'm vexed by cold hands and feet (overall body-chill, to be honest), a symptom that's most obvious to me and my friends in the spring and fall when my friends are enjoying mild, balmy temps and I'm sitting at the dinner table wearing a mid-winter sweater. Across from me at the table will be my friend Rachel, whose neuropathy is chemo-related, also wrapped in a double-knit sweater. So many of us are alike in this.
Here's wishing you the best possible New Year!
Ray (@ray666)
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9 ReactionsYessss especially when you go to Hug someone and grab their hands and they say ewww your Hands are freezing 🥶 and i say Cold hands Warm heart ❤️.
But my poor feet freeze all the time and don't let the covers in the bed touch them 🙄😫. But socks help at night with Cramping. I just found out I have PN .now i know why when
was standing at work for 10 hours my legs and feet felt like bricks 😫.
Praying for A Better year for all.
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Helpful -
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5 ReactionsI have cold feet and calves as well and no surprise, it is where the neuropathy is the worse and I've had this for about 8 years. It started in the feet and as the PN progressed, it worked its way up to the top of the calves.
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5 ReactionsIt’s so nice that newer cars let each passenger control their heat and vents, because I otherwise am very bothersome to others in my need to direct air or heat to my extremities at any given time. I’ve had to walk out of establishments because of how painfully cold and numbing they are on my hands and feet despite my thick socks and gloves in the middle of summer. Extreme heat can be intolerable too. It takes awhile to thaw or cool when the temperature affects happen.
All said, before Gabapentin, it was 10 times worse. I couldn’t escape it all day long. I couldn’t sleep for long because of no physical way of heating or cooling my feet and hands comfortably. It doesn’t work for everyone, but Gabapentin has helped normalize the heat/cold extremes and I only have major discomfort when induced by temperatures outside my control.
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6 ReactionsDo you get any side effects from the Gabapentin?
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2 ReactionsDo you experience any side effects from Gabapentin?