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DiscussionMultiple Myeloma: Could fatigue and breathlessness be ME/CFS?
Blood Cancers & Disorders | Last Active: Dec 27, 2024 | Replies (6)Comment receiving replies
Replies to "Fatigue and breathlessness were the reasons that I went into my GP in the first place...."
In January, 2022, my husband came down with what we thought was a mild case of Covid. In February & April 2022 hospitalization requiring blood transfusions each time 4 bags. Also dealing with POTS which we attributed to Covid. Initially blood loss thought to be huge ulcer near pylori and another on esophagus. In 2023 went to see hematologist/oncologist re low blood levels, POTS , which we thought was all due to Long Covid which very few in Honolulu seem to acknowledge with anything other than a nod of the head. Doctor ordered tests, scans and MRI…October 2023 MRI showed multiple compressed fractures throughout my husband’s back/ribs but he felt no pain. He refused bone marrow biopsy and blood levels just wouldn’t increase and kidney levels also NG. After 5 months of extreme fatigue and POTS while relaxing and resting at a tropical resort which my husband thought would cure all his ailments he finally acknowledged it was someth8ng more than Long Covid. May 2024 he agreed to bone marrow biopsy and June started treatment. This is end of December and he’s been off of his meds for almost 3weeks and he is extremely breathless (cannot walk 10 feet w/o panting) restless and can’t sleep at night and sleeps on and off all day long. He does use oxygen. He is now convinced he has ME/CFS.,. ..he has a few of the symptoms….