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@nboulet

I was diagnosed with MGUS at age 45, around 20 years ago, the numbers were very low and told not to worry about it. 18 years later, 2022 the value numbers from the blood test are 173 not sure what value numbers are. 2024 November numbers went up 400% to 685 not sure if that is good or bad waiting to see a hematologist. I do know the last couple years my progressive neuropathy has worsened. I have had progressive neuropathy for 15 years very bad balance, and difficult walking now.

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Replies to "I was diagnosed with MGUS at age 45, around 20 years ago, the numbers were very..."

@nboulet Welcome to Mayo Clinic Connect. Have you had regular check-ins with your doctor over the years, to "watch and wait" for any changes? You are proof that we can go for many years with no additional symptoms after a diagnosis of MGUS.

How soon will you be able to see your hematologist? Do you have a list of questions ready to get answered?
Ginger