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I have had MGUS for 20 years, I was diagnosed at the age of around 45 years old, the value numbers were so low. I was told not to worry about it, in the last two years, the MGUS blood test value numbers, 2022 Christmas time 173 and then November 2024 the value numbers increased 400% to 685. I am waiting to get to see a hematologist. Not sure what these value numbers are all about. Also, I have been living with progressive neuropathy. that has got worse in the last two years, no balance hard to walk as I am now 65 years old.
Replies to "I have had MGUS for 20 years, I was diagnosed at the age of around 45..."
I might add that I have also had MGUS for more than 20 years. I was diagnosed in 2002 with an “abnormal paraprotein.” I suspect that I had this earlier.
While my numbers have risen over the years and I have some “risky” features like a father with SMM, I still am not in a class of either SMM or MM.
Also a website called SparkCures may have some clinical trials of interest.
@nboulet
When you reference “685,” to what value does this refer?
Have you spoken to your hematologist about what values would necessitate further study?
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What number increased to 685? We are not doctors but maybe we can refer you to helpful websites and information.