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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Feb 26 8:41pm | Replies (1327)

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@sundance6

grendmaR, Sorry for the lateness in getting back to you from yesterday. I will give you a sumation of your insights and questions.
(PLEASE EXCUSE SOME OF MY SPELLING, STILL, CAN'T BELIEVE MAYOCONECT DOES NOT HAVE SPELLCHECK IN THE SYSTEM!)
To start with, as for the Oxycodone it was orginally perscribed to me for very bad Buresitas in my right hip. They had taken pictures and found it! I had a standing percreption of a 30 day supply for pain between steroid injections every 90 days which is the Law! Normally I would begin to hurt about 15-30 days before the next shot! During the average year I would maybe use one or two of the 30 day supply
during the year!
I was having one of these episodies about thirty days before my next injection. I had taaken one Oxy in the morning. Still had the pain early in the PM so I took another, my headache was gone for the first time in six months!
I tried the same regiment the next day. Again no headache! I went to my PCP and told him about what was going on with my headaches. He then percribed two Oxycodones per day! WHICH IS STILL MY PERCRIPTION TODAY!
My feeling about what you hear in the media is that my PCP, pharmacy, and the state have very strick rules about being able to fill it before 3 days when it is due! Much of this is do to street people and PCP's that catered to certain patients! Most of that has been stopped because of the danngers!
Yes, if I am late in taking my PM dose I get my headache back! During the six month period before I found out the Oxy helped I was taking 8-12 IBprofen or other over the counter medicine a day. Are these attributed to "addiction" to the Oxy? I don't know! My PCP and I talk about it all the time! He is comfortable with it as long as I am comfortable!
Because of my business I also don't have the Luxury of staying in bed all day!
ECERISE- I don't have the strength anymore to walk or ride my bike anymore. Plus because of the joint and muscel pain this type of excerise is very diffucult for me! I did start a year and a half ago with Silver Sneakers classes for Yoda and Flex and Balance clases twice a week. When March came that came to an end! Fortunately I have an Angel for an instructor who kept a few of us, which grows every week, for those two classes every week on a Zoom sesion! These do help!
Weight Control- My father was the same height I am, 5'11', and at one time weighed 250lbs. This was something I've always been aware of. So I keep my weight at 180lbs everyday of my life! Even during this last year I am very careful and disiplined about what and when I eat.
Aquatic Excerise- Unfortunately we have a governor who imposed the same rules of the start of the virus as people are compaling about now! Also, again the fatigue and muscel soreness makes it hard for me even if the pools were open!
Chiropractic and Teraputic Massage- I have had body work done on my for the last 50 years. Unfortunately the lady who had been doing on me for over 10 years retired a few years back. Unfortunately I have not found anyone to replace her on a regular basis. I have found someone who is good, but she is very expensive. I'm looking into a person who does both!
I also because of being somewhat Manic depresant I also take a low dose of an anti-depresant! Have been taking it for over twenty years and it does help with sleep, although when i have one of my "EPISODES" of either the Fibro. or Lyme it dosen't help and I suffer even more fatigue the next few days before i goes away!
I appreciate hearing about Your journey! Every little bit of information helps!
I hope I answered all of your concerns and your advice!
Please have a Happy and Safe New Years!
Sundance(RB)

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Replies to "grendmaR, Sorry for the lateness in getting back to you from yesterday. I will give you..."

Hello!
I see you have been through the ringer with this affliction!!!
Just one question pertaining to your headaches.
Have you had an MRI to rule out anything that might be going on with your spine?
Many spinal issues and FM mimic each other....I found that out the hard way.
For years and years I attributed all my aches and pains to FM.
When I moved to Florida (my current place of residence), the doctor took MRIs and found that my spine was a mess!
Today, my FM symptoms are minimum.
I just have to worn anyone who does my massage about the FM.
If they are any good, they know about the trigger points and not to do a deep massage.
Once, I forgot to tell someone, and within hours I was in deep pain.
I hope the New Year brings you health and a lot less pain!
Ronnie

@sundance6 We are not all wired the same and I enjoyed reading your comment. Sounds to me like you know what best works for you. It takes time to learn what helps the most for each of us. There is a lot of information out there. What works for one may hurt another. As for typos-I could never learn to type. I try to proofread otherwise my idioglossia appears on the screen. Neuropathy and mild dyslexia can also complicate things. This is a community where mistakes are allowed and we all have bad days.