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Pain areas move around

Posted by nanniepie @nanniepie, Dec 14, 2024

I’m fairly new with PMR. I take 15 mg of prednisone daily when I wake up in am I find different areas of my body hurt. Now it’s both hands. Does PMR move around like this?

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lexiepayne | @lexiepayne | Dec 24, 2024

Yes, it moves around from large muscle group to another almost continuously.

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elizabethannr | @elizabethannr | Dec 25, 2024
In reply to @usmwp111 "I am on my 13th month of battling PMR. (Male, 71, no other major illnesses) Like..." + (show)
@usmwp111

I am on my 13th month of battling PMR. (Male, 71, no other major illnesses) Like you I started at 15mg Prednisone and tomorrow I will taper down to 1mg Prednisone. The journey was filled with ups & downs from both a mental aspect (the impact of Prednisone) to physical ailments (such as I developed carpal tunnel and my rheumy had me wear wrist braces, and in two weeks it was gone). The pains have indeed traveled throughout my body, but in the long run they settled in on my shoulders & hips. My last major flare was about 8 weeks ago but went away after a day of rest (no change in my prednisone taper schedule). I continue to have aches & minor pains, but when I think back to the original attack in Nov. 2023, I feel so blessed where I am in the battle against PMR. My CRP & ESR numbers have been normal since July, but by no means did that mean I was pain or ache free. I, like most, have had the love/hate relationship with Prednisone (mostly hate) but hopefully in a month it will be in my past. Again, I do continue to have 'manageable' aches and some minor pains, but what I feel has been the turning point is that over the past three weeks my 'grunting, groaning, and yelling ouch' factor has just about disappeared. This Mayo Clinic group has been a blessing to me! The times I was confused or didn't understand what I was experiencing, I found it so comforting (and educational) to read through these threads and get insights from folks who were living the nightmare along with me. To all I wish you the best and hopefully you can enjoy this holiday season.

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Thanks so much for your comments. I was in Maui of all places on vacation when this hit and was so confused it took me awhile realize I'd better go see the doc. 15 mg didn't work so well now I am on 20 mg which is "maybe" better. I "think" the pain is going down in tiny increments each day. I hope to go back down to a lower dose soon. It's the nighttimes that are so aggravating and losing so much sleep. It is comforting to read comments such as yours and to realize that I can't hurry it up on the recovery process. I am 81 and never a patient person. Happy New Year and may you be well.

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23patk | @23patk | Dec 27, 2024
In reply to @dadcue "For some reason ... inexplicable pain hurts more than pain that can be explained. In other..." + (show)
@dadcue

For some reason ... inexplicable pain hurts more than pain that can be explained.

In other words ... if I know why something hurts it seems to hurt less. Does that make sense?

I called almost any pain that I could not explain PMR because there was no other reason for the pain.

Prednisone made the pain stop so it must have been PMR.

I know there is some faulty reasoning in there somewhere.

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I call it my traveling pain show. It has gone from my right hip to my knees to my right hand n shoulders etc. Good luck.

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dorlera | @dorlera | Dec 27, 2024

I'm down to 5 mg soon to be 4 mg. I definitely have achy sore wrists and hands but my rheumatologist says hands aren't really included in the PMR symptoms. I was previously diagnosed with left hip arthritis that has really been in the forefront of body problems over the last month or two. I'm anxious about the taper but onward! Good luck everyone and happy holidays!

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