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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Dec 4 9:55am | Replies (1335)

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@rossjt

Thanks to all of you who have shared your stories! Fibromyalgia seems to be so individualized in the degree to which it affects people and how or if it responds to medications. Unfortunately, I have tried everything that has been mentioned and nothing has been really effective...feel like there is a little black storm cloud over my head! It makes me happy to read of improvements others are able to experience and I monitor posts and may some day read about a medicine or method that I haven't yet tried! I live in a pretty geographically isolated state and so far I have not been able to participate in any clinical trials. It does instill hope, however, to know about the trials and that an effective medical intervention may be just around the proverbial corner! I have read that opiate pain medications are not necessarily the best treatment for fibromyalgia pain, but none of the nerve-focused medications have had any impact on my pain level (which is quite high). For now, until science identifies something better, I use a low dose, opiate pain patch which is changed every 3 days. Although it doesn't completely take the pain away, it makes it livable.

Have any of you noticed your pain increasing/decreasing in correspondence with the barometric pressure? Stable air pressure, preferably high pressure, dramatically eases my pain. Low pressure and pressure fluctuations increase my pain. I live in a pretty windy area and the high wind days increase my pain. II have traveled to Hawaii once and to the Florida gulf coast and my pain disappeared at both locations. I have read this may be related to altitude, warmth, humidity and fairly steady barometric pressure. Has anyone else had similar experiences? My wife and I are going to plan a couple trips to these locations (or similar) to try and get me through what is predicted to be a long, cold and snow-filled winter where I live.

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Replies to "Thanks to all of you who have shared your stories! Fibromyalgia seems to be so individualized..."

@rossjt Wildly waving my hand in the air, here! Yep, I am so sensitive to changes in pressure and humidity. No need to look at weather.com or the news, just tune in to my body ;(( It seems once the pressure changes and stabilizes, either high or low, my system settles down. But that period of flux is hard on me. Achy joints, stiffness, yawning like I can't get air, migraine like headaches.

What is a good remedy for one, is not for others. I am headed to the couch, to snuggle under a flannel blanket. Our cat will join me soon after, and she always seems to comfort me.
Ginger

@rossjt @gingerw @Parus et. al.
Hey, you guys are all singin' my wife's tune. She goes into a slump every time the weather changes, either with pressure going up or going down. She began to be aware of this a year or two back after reading or hearing something about it. Now it is like clockwork, the weather changes and she begins to feel worse. It's automatic. Her fibro, her headaches, her neuropathy, just abut all of her sources of pain get worse. So far there doesn't seem to be much she has found to compensate for it. But it does help to know about it. Hank