Mayo Clinic loves a good challenge so I really hope you’re able to be seen by a specialist to help get a firm diagnosis and treatment. You have a mystery that may take some sleuthing!
Their hematology department is 2nd to none. I’m a bit biased because of outstanding care I’ve had in Rochester for over 5 years. An advantage of Mayo is that all departments works collaboratively for the benefit of the patient. With your preexisting conditions it would be helpful to have that ability of multiple disciplines!

You’ve already learned so much about your medical health, far beyond most people your age who haven’t gone to med school. ☺️ I think your intelligence and curiosity really benefit you when working with your doctors.
What was your college degree?