@t2576mk
Greetings and welcome to the Mayo clinic connect. I did a search and connect for someone who has posted on MGTS and found no posts.
Looking at the literature it is a very rare diagnosis. In fact, there is a letter to the editor from Greek researchers in the New England Journal of Medicine recommending that there be more standardization in the diagnostic criteria.
Perhaps someone more savvy about the search properties in Connect can help us with this or one of our members can chime in.
It’s hard enough coping with a new diagnosis, but one doesn’t like to feel alone in the storm.
When were you diagnosed and how did they rule out other clotting diagnoses to narrow down to MGTS? Were you already diagnosed with MGUS? How did they find the M paraprotein?