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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 7 hours ago | Replies (921)

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@kk1221

Hi!
I agree with checking for an autoimmune disease. I’ve had 4 different drs, including one at Mayo diagnose me with Fibromyalgia. I definitely have the aches you’re describing. But I don’t know that it has anything to do with my MGUS.
My initial finding of MGUS was actually a polyclonal one. Meaning that instead of a monoclonal, one, I had two spikes. One slowly went down over the years & then I was diagnosed with chronic Lyme disease. Related? Not sure. But you can drive yourself crazy trying to understand this glitch we have in our blood. I threw away an entire box of research & decided to do what the drs told me….go live your life & let us take care of this.
Best advice ever! I will always wonder if my bad days, or new pains are the MGUS, but I probably won’t ever have the definitive answers I’ve searched for. Try not to let it overwhelm you, it’s just there for now.

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Replies to "Hi! I agree with checking for an autoimmune disease. I’ve had 4 different drs, including one..."

How were you and who diagnosed the chronic Lyme? I’ve been told I may have it, Lyme tests showed some positive tests but my RA DR AND PCP won’t “diagnose” bc they don’t treat it. Found out I have MGUS recently - don’t know what to do with that one either - except yearly tests. I’m interested in getting Lyme diagnosed to see what can be done bc maybe it’ll help with all I have.