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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (921)

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@kk1221

Hi Colleen!
Thank you so much for the welcome and the links to look at.
It’s been an “up & down” journey for sure. I guess I feel like the older I get the greater the odds of progressing to MM.
My GP doesn’t check my MGUS at all. Not surprising since the Drs at Mayo told me there was no one qualified to keep an eye on it in my area.
So I haven’t had it checked since 2018 I think. My next appointment coincided with the beginning of the pandemic & I was afraid to travel anywhere.
I would really love to find out about a clinical trial that I would fit in.
I was very fortunate to have seen Dr Kapoor and I know he is an amazing researcher on MGUS.
I will keep looking and hopefully this next year can get back up there.
Again, many thanks and if I can help reduce the fear of living with this condition, or answer any questions for someone, I’m happy to do so.
Kaylynn

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Replies to "Hi Colleen! Thank you so much for the welcome and the links to look at. It’s..."

Mayo Clinic currently lists 10 clinical trials related to MGUS. Some are no longer recruiting participants.
- Monoclonal Gammopathy of Undetermined Significance (MGUS) trials https://www.mayo.edu/research/clinical-trials/diseases-conditions/monoclonal-gammopathy-of-undetermined-significance-(mgus)

You can also contact a research coordinator to inquire about available clinical trials for which you might be eligible. Here's the contact info.
Cancer-related clinical studies questions
https://www.mayo.edu/research/clinical-trials
Phone: 855-776-0015 (toll-free)