When he started treatments, it was at 15. They did an ultrasound of the spleen and no issue. Did a bone marrow biopsy and nothing. Started him on prednisone and it did nothing. The next step was 2 days of infusions of platelets (it was a drug to increase production but the name is skipping my ming) that brought him up to 160 on a Saturday (after his final infusion on Friday) but was at 30 by Wednesday. He then started the Rutiximab and he got his first infusion and then they went to injection. At day 10 from the infusion, he lost his vision, had the worst body aches and was not ok. Went to the hematologist and they checked him, and his levels were good, said they didn't think it was the drug as this wasn't normal side effects. We went home and he slept for roughly 3 hours and got up and said he needed to go back in. We went to the ER and sat there FOREVER, once they got him in, he was being tested for everything under the sun with everything coming back negative. They settled on it being a very rare side effect of the Rutiximab. They stopped that immediately and wanted to do a splenectomy and we pushed back asking why since in May his spleen wasn't enlarged. Asked what the steps after the splenectomy if it didn't work. They stated Promacta so we asked if we could go to that first. They were agreeable so we started that. They also put him on a high dosage of a steroid as his platelets were around a 10. He was on Promacta 50mg and high dose steroids for 3 weeks and his platelets were great, we thought yes, this is the answer. Once he started to wean off the steroids (4 days before his blood test) his platelets dropped to a 20. That was on Dec 11th, and we have not heard anything back on the increased dosage at this time. My husband is to be calling the doctor asking about the increased dosage, but he is a man! 🙂 (I do give him a little leeway as he is a self-employed contractor, and we have so many projects on the books that I know he is super busy all while being a great husband and father!)